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When medical cannabis was legalised on November 1st last year, patients and families welcomed the move believing that it would allow access to medication that would help ease the suffering and pain of their loved ones. For some that means relieving the suffering of children having over 100 seizures a day. Shockingly, to date no new NHS prescriptions have been issued. Desperate families have been blocked at every turn by the Health Ministers and the NHS and have been left with little option but to either pay for expensive private prescriptions or to leave the UK in order to provide medicine for their children.
In March, the Secretary of State for Health and Social Care, you met face to face with many of the families that the campaign group End Our Pain are supporting. Some of the patients are children with intractable epilepsy – just like Alfie Dingley and others that prompted the change in the law last year. He told them that he understood they couldn’t wait months for action and that he would help them. Seven months later they are still waiting for action. That is not acceptable.
During that long and painful wait, these families have responded with considerable dignity and courage, with one family forced to sell their family home to pay for a legal medication for their child.
The first anniversary of the Government’s decision to legalise cannabis for medical purposes has passed, and still nothing has changed.
The families don’t need supportive words. They need action. They need NHS prescriptions.
I hope you might agree that this situation is as cruel as it is ridiculous. I very much hope that you will sort this crisis out.
By sending this message you agree to signing the End Our Pain petition and emailing the Health Secretary.